R.E.S.C.I.N.D.

| Introduction | The May 12 Event | Contact Government Officials |
| Contact Media Outlets | Poster | CIND Organizations | A Guide to CIND |
| Florence Nightingale Biography | For More Information |

Turning The Spotlight on Chronic Fatigue and Immune Dysfunction Syndrome/Myalgic Encelphomyelitis

Contacting Government Officials

Sample Letter

(C)opyright 1997-1999 RESCIND, Inc.

By Tom Hennessy, Nancy Solo, Paula Carnes, Maryka Ford, Lucie Dorais, Roger Burns & Chip Davis


U.S. Capitol BuildingUnited States

NOTE: If you cannot find your Congressperson or Senator listed here, you can find his/her address, phone, fax, e-mail address, and district office/phone in the C-Span Congressional Directory at: http://congress.nw.dc.us/c-span/congdir.html

You may also purchase from C-Span, "The 1999 U.S. Congressional Directory" on CD, which contains useful information on the first session of the 106th Congress.The U.S. Congressional Directory is a photographic directory of the members of the U.S. House and Senate. It provides addresses, phone numbers, committee assignments, as well as biographical information about each member of Congress. The publication also offers addresses and phones numbers for the White House, selected federal agencies, the Supreme Court and the nation's governors. The publication also has a section describing C-SPAN's operations, history and departments.  The price is $15.95.


 Important Members of the 106th Congress
in Washington, D.C.

 

Rep. John Porter (R-IL)
2373 Rayburn House Office Building
P: (202) 225-4835
F: n/a
E: http://www.house.gov/porter/
DO: Deerfield, IL
DP: (847) 940-0202

Rep. Dan Miller (R-FL)
102 Cannon House Office Building
P: (202) 225-5015
F: (202) 226-0828
E-mail: miller13@mail.house.gov
DO: Sarasota, FL
DP: (941) 951-6643

 

Rep. Roger Wicker (R-MS)
206 Cannon House Office Building
P: (202) 225-4306
F: (202) 225-3549
E-mail: roger.wicker@mail.house.gov
DO: Tupelo, MS
DP: (601) 844-5437

 

Rep. David Obey (D-WI)
2314 Rayburn House Office Building
P: (202) 225-3365
F: (202) 225-3240
E-mail: n/a
DO: Wausau, WI
DP: (715) 842-5606

 

Rep. Nita Lowey (D-NY)
2421 Rayburn House Office Building
P: (202) 225-6506
F: (202) 225-0546
E-mail: nita.lowey@mail.house.gov
DO: White Plains, NY
DP: (914) 428-1707

 

Sen. Tom Harkin (D-IA)
731 Hart Senate Office Building
P: (202) 224-3254
F: (202) 224-9369
E-mail: tom_harkin@harkin.senate.gov
DO: Des Moines, IA
DP: (515) 284-4574

 

Sen.  Harry M. Reid (D-NV)
528 Hart Senate Office Building
P: (202) 224-3542
F: (202) 224-7327
E-mail: senator_reid@reid.senate.gov
DO: Las Vegas, NV
DP: (702) 474-0041

 


Miscellaneous Senators of the 106th Congress in Washington, D.C.  20510

Joseph Biden (D-DE)
221 Russell Senate Office Building
P: (202) 224-50422
F: (202) 224-0139
E-mail: senator@biden.senate.gov
DO: Wilmington, DE
DP: (302) 573-6345

 

Edward M. Kennedy (D-MA)
315 Russell Senate Office Building
P: (202) 224-4543
F: (202) 224-2417
E-mail: senator@kennedy.senate.gov
DO: Boston, MA
DP: (617) 565-3170

 

Jeff Bingaman (D-NM)
703 Hart Senate Office Building
P: (202) 224-5521
F: (202) 224-2852
E-mail: senator_bingaman@bingaman.senate.gov
DO: Santa Fe, NM
DP: (505) 988-6647

 

Patrick J. Leahy (D-VT)|
433 Russell Senate Office Building
P: (202) 224-4242
F: (202) n/a
E-mail: senator_leahy@leahy.senate.gov
DO: Burlington, VT
DP: (802) 863-2525

 

Paul Coverdell (R-GA)
200 Russell Senate Office Building
P: (202) 224-3643
F: (202) 228-3783
E-mail: senator@coverdell.senate.gov
DO: Atlanta, GA
DP: (404) 347-2202

 

Daniel Patrick Moynihan (D-NY)
464 Russell Senate Office Building
P: (202) 224-4451
F: (202) 228-0406
E-mail: senator@dpm.senate.gov
DO: New York, NY
DP: (212) 661-5150

 

Larry E. Craig (R-ID)
313 Hart Senate Office Building
P: (202) 224-2752
F: (202) 224-2573
E-mail: larry.craig@craig.senate.gov
DO: Boise, ID
DP: (208) 342-7985

 

Charles S. Robb (D-VA)
154 Russell Senate Office Building
P: (202) 224-4024
F: (202) 224-8689
E-mail: senator@robb.senate.gov
DO: Richard, VA
DP: (804) 771-2221

 

Slade Gorton (R-WA)
730 Hart Senate Office Building
P: (202) 224-3441
F: (202) 224-9393
E-mail:
Senator_Gorton@gorton.senate.gov

DO: Bellevue, WA
DP: (425) 451-0103

 

Charles Schumer (D-NY)
229 Dirksen Senate Office Building
P: (202) 224-6542
F: (202) 8-3027
E-mail:
http://www.senate.gov/~schumer
DO: New York, NY
DP: (212) 486-4430

 

Kay Bailey Hutchinson (R-TX)
284 Russell Senate Office Building
P: (202) 224-5922
F: (202) 224-0776
E-mail: senator@hutchinson.senate.gov
DO: Dallas, TX
DP: (214) 361-3500

 

John Warner (R-VA)
225 Russell Senate Office Building
P: (202) 224-2023
F: (202) 224-6295
E-mail: senator@warner.senate.gov
DO: Richmond, VA
DP: (804) 771-2579

 

James M. Jeffords (R-VT)
728 Hart Senate Office Building
P: (202) 224-5141
F: (202) 228-0776
E-mail: vermont@jeffords.senate.gov
DO: Montpelier, VT
DP: (802) 223-5273

 

 

Miscellaneous Representatives of the 106th Congress in Washington, D.C.

 

Joseph Barton (R-TX)
2264 Rayburn House Office Building
P: (202) 225-2002
F: (202) 225-3052
E-mail: rep.barton@mail.house.gov
DO: Arlington, TX
DP: (817) 543-1000

 

Sherwood Boehlert (R-NY)
2246 Rayburn House Office Building
P: (202) 225-3665
F: (202) 225-1891
E-mail: rep.boehlert@mail.house.gov
DO: Utica, NY
DP: (315) 793-8146

 

Rick Boucher (D-VA)
2329 Rayburn House Office Building
P: (202) 225-3861
F: (202) 225-0442
E-mail: ninthnet@mail.house.gov
DO: Abingdon, VA
DP: (540) 628-1145

 

David Lee Camp (R-MI)
137 Cannon Office Building
P: (202) 225-3561
F: (202) 225-9679
E-mail: davecamp@mail.house.gov
DO: Midland, MI
DP: (517) 631-2552

 

Charles T. Canady (R-FL)
2432 Rayburn House Office Building
P: (202) 225-1252
F: (202) 225-2279
E-mail: rep.charles.canady@mail.house.gov
DO: Lakeland, FL
DP: (941) 688-2651

 

John Conyers, Jr. (D-MI)
2426 Rayburn House Office Building
P: (202) 225-5126
F: (202) 225-0072
E-mail: john.conyers@mail.house.gov
DO: Detroit, MI
DP: (313) 961-5670

 

Peter A. DeFazio (D-OR)
2134 Rayburn House Office Building
P: (202) 2255-6416
F: (202) 226-3502
E-mail: peter.defazio@mail.house.gov
DO: Eugene, OR
DP: (541) 465-6732

 

Peter Deutsch (D-FL)
204 Cannon House Office Building
P: (202) 225-7931
F: (202) 225-8456
E-mail: pdeutsch.pub@mail.house.gov
DO: Pembroke Pines, FL
DP: (954) 437-3936

 

Jay Dickey (R-AR)
2453 Rayburn House Office Building
P: (202) 225-3772
F: (202) 225-1314
E-mail: jdickey@mail.house.gov
DO: Pine Bluff, AR
DP: (870) 536-3376
 
Vernon Ehlers (R-MI)
1714 Longworth House Office Building
P: (202) 225-3831
F: (202) 225- 5144
E-mail: rep.ehlers@mail.house.gov
DO: Grand Rapids, MI
DP: (616) 451-8383

 

Anna G. Eshoo (D-CA)
205 Cannon House Office Building
P: (202) 225-8104
F: (202) 225-8890
E-mail: annagram@mail.house.gov
DO: Palo Alto, CA
DP: (650) 323-2984

 

Samuel Gejdenson (D-CT)
2304 Rayburn House Office Building
P: (202) 225-2076
F: (202) 225-4977
E-mail: bozrah@mail.house.gov
DO: Norwich, CT
DP: (860) 886-0139

 

Robert W. Goodlatte (R-VA)
2240 Rayburn House Office Building
P: (202) 225-5431
F: (202) 225-9681
E-mail: talk2bob@mail.house.gov
DO: Roanoke, VA
DP: (540) 857-2672

 

Ernest Jim Istook (R-OK)
2404 Rayburn House Office Building
P: (202) 225-2132
F: (202) 225-1463
E-mail: istook@mail.house.gov
DO: Oklahoma City, OH
DP: (405) 942-3636

 

Samuel Johnson (R-TX)
1030 Longworth House Office Building
P: (202) 225-4201
F: (202) 225-1485
E-mail: http://www.house.gov/samjohnson/
DO: Richardson, TX
DP: (972) 470-0892

 

Thomas Lantos (D-CA)
2217 Rayburn House Office Building
P: (202) 225-3531
F: (202) 225-7900
E-mail: http://www.house.gov/lantos/
DO: San Mateo, CA
DP: (650) 342-0300

 

George Miller (D-CA)
2205 Rayburn House Office Building
P: (202) 225-2095
F: (202) 225-5609
E-mail: george.miller_pub@mail.house.gov
DO: Concord, CA
DP: (925) 602-1880

 

Ed Pastor (D-AZ)
2465 Rayburn House Office Building
P: (202) 225-4065
F: (202) 225-1655
E-mail: edpastor@mail.house.gov
DO: Phoenix, AZ
DP: (602) 256-0551

 

Owen B. Pickett (D-VA)
2133 Rayburn House Office Building
P: (202) 225-4215
F: (202) 225-4218
E-mail: owen.pickett@mail.house.gov
DO: Virginia Beach, VA
DP: (757) 486-3710

 

Robert Portman (R-OH)
238 Cannon House Office Building
P: (202) 225-31164
F: (202) 225-1992
E-mail: portmail@mail.house.gov
DO: Batavia, OH
DP: (513) 732-2948

 

James M. Ramstad (D-MN)
103 Cannon House Office Building
P: (202) 225-2871
F: (202) 225-6351
E-mail: mn03@mail.house.gov
DO: Bloomington, MN
DP: (612) 881-4600

 

Bernard Sanders (I-VT)
2202 Rayburn House Office Building
P: (202) 225-4115
F: (202) 225-6790
E-mail: bernie@mail.house.gov
DO: Burlington, VT
DP: (802) 862-0697
 
Christopher Shays (R-CT)
1126 Longworth House Office Building
P: (202) 225-5541
F: (202) 225-9629
E-mail: rep.shays@mail.house.gov
DO: Bridgeport, CT
DP: (203) 579-5870

 

Fortney "Pete" Stark (D-CA)
239 Cannon House Office Building
P: (202) 225-5065
F: (202) 226-3805
E-mail: petemail@stark.house.gov
DO: Fremont, CA
DP: (510) 247-1388

 

Clifford B. Stearns (R-FL)
2227 Rayburn House Office Building
P: (202) 225-5744
F: (202) 225-3973
E-mail: cstearns@mail.house.gov
DO: Ocala, FL
DP: (352) 351-8777

 

Charles Hart Taylor (R-NC)
231 Cannon House Office Building
P: (202) 225-6401
F: (202) 225-0794
E-mail: RepCharles.Taylor@mail.house.gov
DO: Asheville, NC
DP: (704) 251-1988

 

Melvin Watt (D-NC)
1230 Longworth House Office Building
P: (202) 225-1510
F: (202) 225-1512
E-mail: nc12.public@mail.house.gov
DO: Charlotte, NC
DP: (704) 344-9950

 

 

Senate Appropriations Committee
106th Congress
S-128 Capitol Building
Washington, D.C.  20510
Phone:  (202) 224-3471

 

Ted Stevens (R-AK), Chairman
522 Hart Senate Office Building
P: (202) 224-3004
F: (202) 224-2354
E-mail: senator_stevens@stevens.senate.gov
DO: Anchorage, Alaska
DP: (907) 271-5915

 

Mitch McConnell (R-KY)
361A Russell Senate Office Building
P: (202) 224-2541
F: (202) 224-2499
E-mail: senator@mcconnell.senate.gov
DO: Louisville, KY
DP: (502) 582-6304

 

Robert Byrd (D-WV), Ranking Member 
311 Hart Senate Office Building
P: (202) 224-3954
F: (202) 228-0002
E-mail: senator_byrd@byrd.senate.gov
DO: Charleston, WV
DP: (304) 342-5855

 

Richard Shelby (R-AL)
110 Hart Senate Office Building
P: (202) 224-5144
F: (202) 224-3416
E-mail: senator@shelby.senate.gov
DO: Tuscaloosa, AL
DP: (205) 759-5047

 

Arlen Specter (R-PA)
711 Hart Senate Office Building
P: (202) 224-4254
F: (202) 228-1229
E-mail: senator_specter@specter.senate.gov
DO: Philadelphia, PA
DP: (215) 597-7200
 
Ben Campbell (R-CO)
380 Russell Senate Office Building
P: (202) 224-5852
F: (202) 224-1933
E-mail: administrator@campbell.senate.gov
DO: Englewood, CO
DP: (303) 843-4100

 

Thad Cochran (R-MS)
326 Russell Senate Office Building
P: (202) 224-5054
F: (202) 224-9450
E-mail: senator@cochran.senate.gov
DO: Jackson, MS
DP: (601) 965-4459

 

Larry Craig (R-ID)
520 Hart Senate Office Building
P: (202) 224-2752
F: (202) 228-1067
E-mail: larry_craig@craig.senate.gov
DO: Boise, ID
DP: (208) 342-7985

 

Slade Gorton (R-WA)
730 Hart Senate Office Building 
P: (202) 224-3441
F: (202) 224-9393
E-mail: senator_gorton@gorton.senate.gov
DO:  Bellevue, WA
DP:  (425) 451-0103

 

Conrad Burns (R-MT)
187 Dirksen Senate Office Building
P: (202) 224-2644
F: (202) 224-8594
E-mail: conrad_burns@burns.senate.gov
DO: Helena, MT
DP: (406) 449-5401

 

Pete Domenici (R-NM)
328 Hart Senate Office Building
P: (202) 224-6621
F: (202) 224-7371
E-mail: senator_domenici@domenici.senate.gov
DO: Santa Fe, NM
DP: (505) 988-6511

 

Judd Gregg (R-NH)
393 Russell Senate Office Building
P: (202) 224-3324
F: (202) 224-4952
E-mail: mailbox@gregg.senate.gov
DO: Concord, NH
DP: (603) 225-7115

 


Department of Health and Human Services
Centers for Disease Control and Prevention
National Institutes of Health

 

President William J. Clinton
The White House
1600 Pennsylvania Avenue
Washington, D.C.  20500
P: (202) 456-1414
F: 202) 456-2461
E-mail: president@whitehouse.gov
 
Vice President Albert Gore
The White House
|1600 Pennsylvania Avenue
Washington, D.C.  20500
P: (202) 456-2326                    
F: (202) 456-246
E-mail: vice.president@whitehouse.gov

 

Donna Shalala, M.D.
Secretary, Health and Human Services
200 Independence Avenue SW
Room 719H
Washington, D.C.  20201
P: (202) 690-6867
F: (202) 690-6608

 

David Satcher, M.D., Ph.D.
Assistant Secretary, Health and Human Services
U.S. Surgeon General
Department of Health and Human Services
200 Independence Avenue SW
Washington, D.C.  20201
P:  (202) 690-7694
F:  (202) 690-6960
E-mail:

 

Arthur Lawrence, M.D.
Senior Advisor to the
Asst. Secretary, Health and Human Services
Building HHH, Room 716G
200 Independence Avenue SW
Washington, D.C. 20201
P: 202-690-5605
F: 202-690-7425
E-mail: ALawrence@OSOPHS.DHHS.GOV

Nicole Lurie, M.D.
Department of Health and Human Services
Building HHH, Room 736E
200 Independence Avenue SW
Washington, D.C. 20201
P: 202-690-7694
F: 202-690-6960
E-mail: NLurie@OSOPHS.DHHS.GOV
 
Harold Varmus, M.D.
Director, National Institutes of Health
Building 31,  Room 2B25
9000 Rockville Pike
Bethesda, MD  20892
P: (301) 496-2535
F: (301) 496-0017
E-mail:  varmus@box-v.nih.gov
 
Stephen Straus, M.D.
National Institutes of Allergy and Infectious Diseases
Building 10, Room 11N228
9000 Rockville Pike
Bethesda, MD 20892
P: (301) 496-5221
F: n/a
E-mail: ss44z@nih.gov

 

Anthony Fauci, M.D.
|Director, National Institute of Allergy and Infectious Diseases
Building 31,  Room 7803
9000 Rockville Pike
Bethesda, MD  20892
P: (301) 496-5717
F: (301) 496-0017
E-mail: afauci@niaid.nih.gov
 
 
Brian Mahy, M.D.
Director, Center for Disease Control and Prevention
Centers for Disease Control and Prevention
Building CLFT 3 117A, Mail stop A30
1600 Clifton Road NE
Atlanta, GA 30333
P: 404-639-3574
F: n/a
E-mail: bxm1@CDC.GOV

 

William Reeves, M.D.
CDC, Viral and Rickettsial Diseases
NCID MS A15
1600 Clifton Road
Atlanta, GA 30333
P: (404) 639-1338
F: (404) 639-0221
E-mail: wcr1@cdc.gov

 


United Kingdom

 

The Right Honourable Tony Blair, MP
The Prime Minister
10 Downing Street
London
SW1A 1AA

 

The Right Honourable Frank Dobson, MP
Secretary of State for Health
Department of Health
Richmond House
79 Whitehall
London
SW1A 2NS

 


Canada

http://canada.gc.ca/main_e.html

 

The Right Honourable Jean Chretien
Prime Minister's Office
Langevin Block
80 Wellington Street
Ottawa, Ontario K1A 0A2
P: (613) 992-4211
F: (613) 941-6900

 

The Honourable Diane Marleau
Minister of Health
Jeanne Mance Building
Tunney's Pasture
Ottawa, Ontario K1A 0K9
P: (613) 957-0200
F: (613) 952-1154

 

Pension issues have been delegated to the Minister for Human Resources and Labor:

 

The Honourable Lloyd Axworthy
Minister for Human Resources and Labor
140 Promenade du Portage
Phase 4, 14th floor
Hull, Quebec K1A 0J9
Telephone: (819) 994-2482
Fax: (819) 994-0448

 

It is also important in Canada to contact public health officials at the provincial level.

Australia

The Honourable John Howard
Prime Minister
Parliament House
Canberra  ACT  2600
Australia
Tel:  +61 2 6277 7700
Fax:  +61 2 6273 4100
Internet -
http://www.aph.gov.au/house/members/member.asp?ID=ZD4
The Honourable Dr Michael Wooldridge
Minister for Health and Aged Care
Parliament House
Canberra  ACT  2600
Australia
Tel:  +61 2 6277 7220
Fax:  +61 2 6273 4146
E-mail - Michael.Wooldridge.MP@aph.gov.au
Internet:
http://www.aph.gov.au/house/members/member.asp?ID=8E4

 


New Zealand

The Right Honourable Jenny Shipley
Prime Minister
Parliament Buildings
Wellington, New Zealand
Tel:  +64 4 471 9700
Fax:  +64 4 473 2508
E-mail - prime.minister@ministers.govt.nz
Internet - http://www.dpmc.govt.nz/
The Honourable Wyatt Creech
Minister of Health
133 Molesworth Street
P.O. Box 5013
Wellington, New Zealand
Tel:  +64 4 496 2000
Fax:  +64 4 496 2340
E-mail - deputy.prime.minister@ministers.govt.nz
Internet - http://www.moh.govt.nz/moh.nsf
 
It is also important, in these countries, to contact public health officials at the state and local government level if it applies.

 


Denmark

 For information on activities in Denmark, go to http://home12.inet.tele.dk/carpntry


Sample Letter

The following is a sample letter regarding the need for attention to CIND matters for government officials.  Feel free to write your own, more personal letter if you prefer.

 Dear (name):

 Since you are an influential official who can command a great deal of attention on specific issues, I am writing to alert you that we are approaching May 12th, which is International Awareness Day for Chronic Immunological and Neurological Diseases.  CIND illnesses include: M.E. (Myalgic Encephalomyelitis, the term used in most of the world) / CFS (Chronic Fatigue Syndrome, the term used by the U.S. government); Fibromyalgia Syndrome; Gulf War Syndrome; and Multiple Chemical Sensitivity Syndrome. These are devastating illnesses that are striking a growing number of people around the world – a fact to which I can sadly personally attest.  Under the May 12th International Awareness Day charter, they have been combined under the umbrella of CIND based on existing research and commonality of symptoms.

 These illnesses, characterized by cognitive problems, chronic muscle and joint pain, extremely poor stamina, and numerous other symptoms, leave many sufferers ill and bedridden for years at a time.  The toll that this sudden disability takes on families, not to mention the national economy, is enormous.  I don't want to inundate you with piles of paperwork that may or may not be of interest to you, but RESCIND, Inc, has a website with hundreds of links to literally thousands of pages of research and commentary.  RESCIND, Inc. (Repeal Existing Stereotypes about Chronic Immunological and Neurological Diseases), is a 501(c)3 non-profit corporation.   Please take a moment to visit this website at http://www.geocities.com/capitolhill/4277.

It is important to note that the May 12th date was chosen to memorialize the birth date of Florence Nightingale, the English army nurse who inspired the founding of the International Red Cross.  Nightingale contracted a paralyzing, CIND-like illness in her mid-thirties and spent the last 50 years of her life virtually bedridden.

 If a cause and cure are to be found for CIND in the near future, the government and the medical community must respond MUCH more vigorously.  I implore you to use your substantial power as a public servant to see that this happens.  May 12th of this year should mark the beginning of a new era of thorough medical investigation into CIND.

 Sincerely yours,

 (name)


 NOTE: if you write to a President or a Prime Minister, you should address the letter to “Dear Mr. President:” or “Dear Mr. Prime Minister:” and end it with “Yours faithfully,”.  All the other persons can be addressed as “Dear Mr. ...” or “Dear Mrs./Ms. ...”.

 To send an e-mail message, click on the hyperlink for the recipient(s).  If you would like to send a letter or fax, simply copy and paste the name(s) and address(es), as well as the sample letter (optional), into your word processing program.  You can then edit the letter and use that template to write to multiple recipients.


| Introduction | The May 12 Event | Contact Government Officials |
| Contact Media Outlets | Poster | CIND Organizations | A Guide to CIND |
| Florence Nightingale Biography | For More Information |


Contact RESCIND president Tom Hennessy at RESCINDINC@aol.com

Webmaster: Roger Burns rescind-web@egroups.com

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