HOT LINKS
NEWS
- The Countess of Mar indicts Simon Wessely and critiques the UK Chief Medical Officer's Report on Myalgic Encephalomyelitis. Read the Countess' words in the April 16, 2002 debate in the House of Lords, in which she refers to Wessely as a Nero-like "fact fiddler," and to the CMO report as shockingly tainted by his influence.
- Possible test for MCS and CFS. $9 simple and cheap, at http://www.chronicneurotoxins.com/ -- Dr. Ritchie C. Shoemaker, author of "Desperation Medicine", has had success in treating sick building syndrome, chronic Lyme disease, and Pfiesteria and ciguatera poisoning by using the drug Questran (cholestyramine) which binds toxins in the body.
- SIGN THE M.E. PETITION NOW!
- RESTORE M.E.-- Parallels with poliomyelitis, transverse myelitis and related disorders, an essay on why the name Myalgic Encephalomyelitis should be restored, by Judith Silverman
- New book by M.E. patient:
A GREAT book by ME patient Laura Hillenbrand of Washington, DC who has been ill for 14 years after getting food poisoning and never recovering. The story of Seabiscuit was about an almost lame horse, ridden by an almost blind jockey and trained by semi-disabled trainer, but which eventually defeated the greatest horses, owners and jockeys of their day. The book is being made into a hollywood movie. Laura has said: "Calling this disease chronic fatigue is like comparing a match to a nuclear bomb." A great read by a true fighter.
- Click to subscribe to the CauseAndCure coalition:
- CDC Scandal featured in Associated Press wire story
- Report on the April 21-22 CFSCC meeting
- SCIENTISTS SAY TRAIL OF GULF ILLNESS LEADS TO BAD VACCINE,PENTAGON ISSUES DENIALS
- New York Times prescribes psychiatric therapy for CFS -- see the full text of this article, published March 16
- Inquiry begins on plane crash that generated M.E.-like illness, appparently due to chemical exposures-- and who were those mysterious men in sspace suits? This page links to a BBC update, and contains a background article from the Los Angeles Times about this puzzling story of the 1992 Amsterdam crash of an Israeli cargo plane.
- JAZZ PIANIST KEITH JARRETT PLAYS THE CFIDS/M.E. BLUES -- the world-famous Grammy-nominated musician discusses his career and his struggles with his illness in two interviews.
- Straus says Gulf War illness is likely psychological -- commentary published in the Lancet.
- Al Franken and CFIDS -- the comedy author makes controversial remarks on TV about PWCs. Patients protest and RESCIND leader Tom Hennessy meets Al Franken. On Jan. 25, Franken issues an apology.
- Wall Street Journal Blasts CFS Again -- The WSJ again uses bad science to attack CFS and its victims. RESCIND's WSJ page is the most complete and timely on this issue, see it at http://www.geocities.com/CapitolHill/4277/wsj-9812.html .
- Gulf War Illness report by the Washington Post, Nov. 23-24, 1998
- Abstracts from the October 1998 AACFS medical conference
- TOM HENNESSY interview -- June 21, from the CFS Radio Show
- Mazlen CFS Radio Show
- Possible test for MCS and CFS. $9 simple and cheap, at http://www.chronicneurotoxins.com/ -- Dr. Ritchie C. Shoemaker, author of "Desperation Medicine", has had success in treating sick building syndrome, chronic Lyme disease, and Pfiesteria and ciguatera poisoning by using the drug Questran (cholestyramine) which binds toxins in the body.
Awareness campaigns
- May 12 -- International Awareness Day
- Irish Blue Ribbon M.E. Awareness Campaign -- this is an interesting report, these folks did a good job with their project
- Michelle Akers-- she is a star soccer player on the worrld cup team playing right now.Akres might be a good spokesperson for us.Although she is healthier than most PWCs, she has been through hell and she has a good website. She has been written up lately in USA Today and the L.A. Times
- The case for ME-itis, by Jean Harrison
- Name-change session at Boston -- October 1998
- Florence Nightingale -- a diagnosis at last?
- MCS Awareness Week -- May 11-17, 1998
C.I.N.D. Pages
- Click to subscribe to the CauseAndCure coalition:
- Chronic Syndrome Support Assn. (see also our free pamplet on CIND illnesses available in English, French and Danish)
- Abstracts from the CRISP Database Pertaining to CFS and Related Illnesses
CFIDS / M.E.
- CFS/M.E. Info Page, from the publisher of CFS-NEWS
- Chronic Fatigue Syndrome -- The Mining Company
- The X-Files and CFS -- Is the truth out there?
- National CFIDSFoundation (USA)
- CFS Association of Long Island (New York)
- Immunosciences Lab, does research on protein kinase RNA in CFS, and Chlamydia pneumoniae, offers tests for mycoplasma infection-- Aristo Vojdani, PhD.
- Dr. Michael J. Goldberg, researching the links between CFIDS and ADD/ADHD
- Post-Polio Survivors
- BOOK: Stricken: Voices from the Hidden Epidemic of Chronic FatigueSyndrome -- edited by Peggy Munson
- CFIDS Association of America
- WECAN group
- HEMISPHERx Biopharma the drug company which is developing Ampligen
Gulf War Illness
- Dr. Len Horowitz -- this scholar documents the links between AIDS, viruses, vaccines, and the Gulf War Syndrome
- Mycoplasma Registry -- The American Gulf War Veterans Association asks vets and civilians to submit this online form which will compile statistics on how many of us have this condition, andespecially how many have found treatment to be effective.
- Gulf vet speaks out - This page contains a letter to the government that is well written and gives a clear description of what Gulf War veterans are currently facing. The page also contains critical comments on the government's official exploration of this illness.
- Gulf War Disease
- American Gulf War Veterans Association
- Gulf War Illness links
Fibromyalgia
- www.fms-help.com -Featuring Dom's Newsletter
- Fibromyalgia Network
- Fibromyalgia & Chronic Myofascial Pain Syndrome Information: A Frequently Missed Diagnosis -- from Dr. Devin J. Starlanyl, M.D.
- Fibromyalgia info
- STATEMENT OF DR. STEPHEN I. KATZ, DIRECTOR, National Institute of Arthritis and Musculoskeletal and SkinDiseases on Fiscal Year 1999 President's Budget Request for the National Institutes of Health, March 17, 1999 -- Could the government be coming our way? This official testimony discusses tackling FMS by using many different branches within NIH.
Multiple Chemical Sensitivity, Lyme disease, Pain Management and other conditions
- http://dreddyclinic-cleansing.blogspot.com/2008/04/i-am-not-only-crazy-in-town-after-all.html
- Chemical exposure prompts encephalomyelitis after jet crash: authorities deny knowledge-- and who were those mysterious men in sspace suits? Article from the Los Angeles Times
- Organophosphates and health effects
- Protect All Children's Environment -- PACE exists to respond to the need for comfort and support by pesticide victims providing support to fellow pesticide survivors on an all volunteer, not-for-profit basis.
- MCS links from RESCIND -- a great list of links
- MCS links from CFS-NEWS
- Lyme Disease links
- Lyme disease misdiagnosed as fibromyalgia
- Multiple Sclerosis information from the National M.S. Society
- Action On Pain -- a campaign for sensible pain treatment
- Mental Health Matters
- Toxic world -- an article by S. Suzanne Fisher explains how government regulationsgive a false impression that we are being protected from industrial toxins
Be sure to contact government officials and the media to alert them to the importance of M.E. and related conditions. See the information page for May 12 International Awareness Day.